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THE MANAGEMENT OF STIGMA BY ALZHEIMER FAMILY CAREGIVERS

This article explores family caregivers' management of the courtesy stigma acquired in the course of their relationship with a family member suffering from the progressive deterioration of Alzheimer's disease. Caregivers' accounts from in-depth interviews and from support group meetings suggest that stigma management by the Alzheimer caregiver moves through two distinct phases: the first marked by collusion with the person with Alzheimer's; the second by realignment and collusion with an expanding circle of others. As caregivers move through these phases there is a gradual shift of management priorities from control of information to control of problematic situations.

Journal of Contemporary Ethnography, Vol. 20, No. 3, 263-284 (1991)
DOI: 10.1177/089124191020003002


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